PERCEPTION OF THE PERSON WHO LIVES WITH HIV / AIDS AND THEIR FAMILIES IN RELATION TO THE CARE IN THE HOSPITALIZATION

CONSIDERING THE INDEX OF ANXIETY AND DEPRESSION

Authors

  • Analice Cristhian Flavio Quintanilha Universidade Federal de Mato Grosso do Sul
  • Valdir Aragão Nascimento
  • Albert Schiaveto de Souza Universidade Federal de Mato Grosso do Sul https://orcid.org/0000-0003-0017-672X

DOI:

https://doi.org/10.31686/ijier.vol9.iss7.3206

Keywords:

Patient-centered care, Family, HIV/AIDS, Anxiety, Depression

Abstract

The human immunodeficiency virus (HIV) was discovered in the 1980s, it affects the immune system and when not treated with appropriate medications it can lead the person to develop acquired immunodeficiency syndrome (AIDS). The antiretroviral therapy (ART) that makes HIV undetectable was discovered in 1990. However, despite the free ART in Brazil, there is still a challenge regarding the adherence of people (100%) living with HIV/AIDS (PLWHA), because the abandonment of the medication or the non-regular use reduces future treatment options which cause illness and death. The objective of this research was to understand the perception of the person living with HIV/AIDS and their family members, regarding the care offered in the infectious and parasitic diseases unit. In addition, the anxiety and depression rate that affects them during the hospitalization period will be considered. This study was carried out in the Infectious and Parasitic Inpatient Sector DIP Infirmary (Enf/DIP), which is part of the Infectious and Parasitic Diseases Unit (UNIDIP) of the Hospital Maria Aparecida Pedrossiam (HUMAP), in the municipality of Campo Grande - MS. The prospective collection of primary data was obtained through questionnaires that were replaced by words and expressions in the title and in the content. Changes were made and elaborated with the objective of improving the understanding of the sentences, which became a semantic evaluation of content by a committee of evaluators. Thus, before the final application of the questionnaire to the participants, all the steps cited constituted the methodological strategies for capturing data.

Downloads

Download data is not yet available.

Author Biography

Valdir Aragão Nascimento

Doutor pelo Programa de Pós-Graduação em Saúde e Desenvolvimento na Região Centro-Oeste PPGSD/UFMS - (Área de concentração: Saúde e Sociedade)

References

A.K. Abbas, A.H. Lichtman, S. Pillai. “Imunologia celular e molecular”. Elsevier, Rio de Janeiro, 2015. Available from:: https://pesquisa.bvsalud.org/portal/resource/pt/lil-766648. Acess in: 23 fev. 2021.

G. Antelman, S. Kaaya, R. Wei, J. Mbwambo, G.I. Msamanga, W.W. Fawzi, M.C.S. Fawzi. “Depressive symptoms increase risk of HIV disease progression and mortality among women in Tanzania.” Journal of Acquired Immune Deficiency Syndromes, v. 44, n. 4, p. 470–477, Apr. 2007. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6276368/pdf/nihms-998060.pdf. Acess in: 12 out. 2019. DOI: https://doi.org/10.1097/QAI.0b013e31802f1318

Australian Commission On Safety And Quality In Health Care. “Patient Centred Care: improving quality and safety through partnerships with patients and consumers” Sidney: ACSQHC, 2011. Available from: https://www.safetyandquality.gov.au/sites/default/files/migrated/PCC_Paper_August.pdf. Acess in: 23 fev. 2020.

R.L.W. Azevedo, E.A. SILVA, L.R. Dionísio, A.A.W. Saldanha. “Transtornos Afetivos/cognitivos associados à TARV e à qualidade de vida no contexto da AIDS” Revista Interamericana de Psicologia, v. 48, n 2, p. 238-251, nov. 2014. Available from: https://webcache.googleusercontent.com/search?q=cache:IvJtDbpA8d8J:https://journal.sipsych.org/index .php/IJP/article/download/263/pdf_36/590+&cd=1&hl=pt-BR&ct=clnk&gl=br. Acess in: 26 jun. 2019.

F.S. Balbino, M.M.F.G. Balieiro, M.A. Mandetta. “Avaliação da percepção do cuidado centrado na família e do estresse parental em unidade neonatal” Revista Latino Americana de Enfermagem, v. 24, p. 1-9, jan. 2016. Available from: https://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104- DOI: https://doi.org/10.5902/2179769216340

&lng=en&nrm=iso&tlng=pt. Acess in: 18 set. 2019.

D. Bandeira, T.H. Weiller, A.N. Damaceno, N.R. Cancian, G.S. Santos, S.T. Beck. “Adesão ao tratamento antirretroviral: uma intervenção multiprofissional” Revista de Enfermagem do Centro Oeste Mineiro, v. 6, n. 3, p. 2446-2453, out. 2016. Available from: http://www.seer.ufsj.edu.br/index.php/recom/article/view/994. Acess in: 12 out. 2019. DOI: https://doi.org/10.19175/recom.v6i3.994

M.A.M. Barbosa, M.M.F.G. Balieiro, M.A.M. Pettengill. “Cuidado Centrado na Família no contexto da criança com deficiência e sua família: uma análise reflexiva” Texto & Contexto Enfermagem, v. 21, n. 1, p. 194-199, jan./mar. 2012. Available from: https://www.scielo.br/scielo.php?pid=S0104-07072012000100022&script=sci_abstract&tlng=pt. Acess in: 18 set. 2019. DOI: https://doi.org/10.1590/S0104-07072012000100022

B.O. Baptista, M. Beuter, N.M.O. Girardon-Perlini, C.M. Brondani, M.L.D. Budó, N.O. Santos. “A sobrecarga do familiar cuidador no âmbito domiciliar: uma revisão integrativa da literatura.” Revista Gaúcha de Enfermagem, v. 33, n. 1, p. 147-156, mar. 2012. Available from: https://www.scielo.br/scielo.php?pid=S1983-14472012000100020&script=sci_arttext. Acess in: 18 dez. 2019. DOI: https://doi.org/10.1590/S1983-14472012000100020

J.B. Bessa, M.A.P Waidman. “Família da pessoa com transtorno mental e suas necessidades na assistência psiquiátrica” Texto & Contexto Enfermagem, v. 22, n. 1, p. 61-70, mar. 2013. Available from: https://www.scielo.br/scielo.php?pid=S0104-07072013000100008&script=sci_abstract&tlng=pt. Acess in: 15 dez. 2019. DOI: https://doi.org/10.1590/S0104-07072013000100008

M.L. Botti, G.B. Leite, M.F.D. Prado, M.A.P. Waidman, S.S. Marcon. “Convivência e percepção do cuidado familiar ao portador de HIV/AIDS” Revista Enfermagem UERJ, v. 17, n. 3, p. 400-405, set. 2009. Available from: https://pesquisa.bvsalud.org/portal/resource/pt/bde-17056. Acess in: 16 nov. 2019.

BRASIL. Ministério da Saúde. Programa Nacional de DST e Aids. “Manual de adesão ao tratamento para pessoas vivendo com HIV e Aids” Brasília, DF: Ministério da Saúde, 2008. Available from: http://bvsms.saude.gov.br/bvs/publicacoes/manual_adesao_tratamento_hiv.pdf. Acess in: 16 nov. 2020.

BRASIL. Ministério da Saúde. Secretaria de Vigilância em Saúde. Departamento de Doenças de Condições Crônicas e Infecções Sexualmente Transmissíveis. “Boletim Epidemiológico de HIV e Aids” Brasília, DF: Ministério da Saúde, 2019a. Número especial. Available from: http://www.aids.gov.br/pt-br/pub/2019/boletim-epidemiologico-de-hivaids-2019. Acess in: 16 jan. 2021.

BRASIL. Ministério da Saúde. “Aids/HIV: O que é, causas, sintomas, diagnóstico, tratamento e

Prevenção” Brasília: Ministério da Saúde, 2019b. Available from: http://www.saude.gov.br/saude-de-a-

z/aids-hiv. Acess in: 09 dez. 2019.

A.M. Brasileiro, J.C. Ribeiro. “Multiparentalidade no contexto da família reconstituída e seus efeitos jurídicos” Revista online FADIVALE, v. 12, n. 13, p. 1-22, jun. 2016. Available from: https://fadivale.com.br/portal/revista/#1505129150988-2fabac35-886c. Acess in: 24 jun. 2019.

L. Cardoso, S. A. F. Galera, M.V. Vieira. “O cuidador e a sobrecarga do cuidado à saúde de pacientes e egressos de internação psiquiátrica” Acta Paulista de Enfermagem, v. 25, n. 4, p. 517-523, jan. 2012. Available from: https://www.scielo.br/pdf/ape/v25n4/06.pdf. Acess in: 18 jan. 2020. DOI: https://doi.org/10.1590/S0103-21002012000400006

P. P. Carvalho. Adesão à terapia antirretroviral de pessoas vivendo com HIV/aids. 2017. Dissertação (Mestrado em Psicologia) - Universidade Federal do Triângulo Mineiro, Uberaba, Minas Gerais, 2017. Available from: http://bdtd.uftm.edu.br/handle/tede/505?locale=pt_BR. Acess in: 18 jan. 2021.

P. P. Carvalho. “Fatores associados à adesão à Terapia Antirretroviral em adultos: revisão integrativa de literatura” Ciência & Saúde Coletiva, v. 24, n. 7, p. 2543-2555, jul. 2019. Available from: https://www.scielo.br/scielo.php?script=sci_arttext&pid=S1413-81232019000702543. Acess in: 12 out. 2019. DOI: https://doi.org/10.1590/1413-81232018247.22312017

A.D. Colaço. A integralidade no cuidado à pessoa com HIV/AIDS na atenção básica à saúde: A percepção dos enfermeiros. 2016. 145 f. Dissertação (Mestrado em Enfermagem) - Universidade Federal de Santa Catarina, Florianópolis, 2016. Available from: https://core.ac.uk/download/pdf/78549388.pdf. Acess in: 12 out. 2020.

M.F.C. Coutinho, G. O´Dwyer, V. Frossard. “Tratamento antirretroviral: adesão e a influência da depressão em usuários com HIV/Aids atendidos na atenção primária Saúde debate” Rio de Janeiro, v. 42, n. 116, p. 148-161, jan. 2018. Available from: http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0103-11042018000100148&lng=en&nrm=iso Acess in: 10 Mar. 2021. DOI: https://doi.org/10.1590/0103-1104201811612

V.T. Costa, B.H.S. Meirelles. “Adherence to Treatment of young adults living with HIV/AIDS from the perspective of complex thinking” Texto & Contexto - Enfermagem, v. 28, p. 1-15, Nov. 2019. Available from: https://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-07072019000100387. Acess in: 13 mar. 2020. DOI: https://doi.org/10.1590/1980-265x-tce-2017-0016

J.C. Costa, L.B. Arruda, L.M. Mendonça, C.G.O. Lucas. “Síndrome da Imunodeficiência Adquirida/AIDS” In: N.S.O. Santos, M.T.V. Romanos, M.D. Wigg. (ed.). Virologia Humana. 3. ed. Rio de Janeiro: Guanabara Koogan, 2015. p. 1085-1163. Available from:

https://dokumen.pub/virologia-humana-3nbsped.html. Acess in: 13 mar. 2021.

P.P. Christo, “Alterações cognitivas na infecção pelo HIV e AIDS” Revista da Associação Médica

Brasileira, v. 56, n. 2, p. 242-247, nov. 2010. Available from: DOI: https://doi.org/10.1590/S0104-42302010000200027

https://www.scielo.br/scielo.php?script=sci_arttext&pid=S0104-42302010000200027. Acess in: 16 jan.

Organização Mundial Da Saúde. “Classificação Internacional de Doença” CID-10. 10. ed. São

Paulo: Ed. Universidade de São Paulo, 2017. 1200 p. Available from:

https://pebmed.com.br/cid10/?utm_source=google&utm_medium=cpc&utm_campaign=search_cid&gclid=Cj0KCQjwrsGCBhD1ARIsALILBYoodDyFYpYeANdY8ygjq25_JuaM0rE58lWtPD1KCppi_oEIX5uKiPYaAn5UEALw_wcB. Acess in: 13 mar. 2021.

A.C. Cruz, M. Angelo. “Cuidado centrado na família em pediatria: redefinindo os relacionamentos” Ciência, Cuidado e Saúde, v. 10, n. 4, p. 861-865, out./dez. 2011. Available from: http://www.periodicos.uem.br/ojs/index.php/CiencCuidSaude/article/view/18333. Acess in: 18 set. 2019. DOI: https://doi.org/10.4025/cienccuidsaude.v10i4.18333

M. Delalibera, J. Presa, A. Barbosa, I. Leal. “Sobrecarga no cuidar e suas repercussões nos cuidadores de pacientes em fim de vida: revisão sistemática da literatura” Ciência & Saúde Coletiva, v. 20, n. 9, p. 2731-2747, out. 2015. Available from: https://www.scielo.br/scielo.php?pid=S1413-81232015000902731&script=sci_abstract&tlng=pt. Acess in: 05 jan. 2020. DOI: https://doi.org/10.1590/1413-81232015209.09562014

Department Of Health. The NHS Plan - A plan for investment. A plan for reform. Norwich: The Stationery Office, 2000. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1118315/pdf/315.pdf. Acess in: 05 jan. 2021.

D.L. Dokken, J. Kaufman, B.H. Johnson, S.B. Perkins, J. Benepal, A. Roth, K. Dutton, A. Jones. “Changing hospital visiting policies: From families as ‘visitors’ to families as partners” Journal of Clinical Outcomes Management, v. 22, n. 1, p. 29-36, Jan. 2015. Available from: https://www.mdedge.com/jcomjournal/article/146722/practice-management/changing-hospital-visiting-policies-families-visitors. Acess in: 23 fev. 2020.

T.Q. Farias, L.L. Nascimento, Xavier, M.A. Cabral, M.F. “Políticas públicas de DST/AIDS e concretização de direitos humanos” Revista Âmbito Jurídico, v. 10, n. 40, p.1-4, abr. 2007. Available from: https://ambitojuridico.com.br/cadernos/direito-administrativo/politicas-publicas-de-dst-aids-e-concretizacao-de-direitos-humanos/. Acess in: 30 dez. 2019.

M.A.M. Ferreira, T.N.B. Lima, B.F.L. Rodrigues, J.A. Nascimento, V.P. Bezerra, A.C.F.A. Patrício, “Conhecimento e fatores que influenciam na adesão à terapia antirretroviral de pessoas vivendo com hiv/aids.” Cogitare Enfermagem, v. 25, n. 1, p. 1-13, jun. 2020. Available from: https://revistas.ufpr.br/cogitare/article/view/67768. Acess in: 19 ago. 2020. DOI: https://doi.org/10.5380/ce.v25i0.67768

A.S. Garbelini, Funcionamento familiar como mediador da sobrecarga percebida, qualidade de vida, ansiedade e depressão de cuidadores familiares. 2014. Dissertação (Mestrado em Ciências – Programa de Enfermagem Psiquiátrica) – Universidade de São Paulo, São Paulo, 2014. Available from: https://www.teses.usp.br/teses/disponiveis/22/22131/tde-09012015-100223/publico/ADRIANADOSSANTOSGARBELINI.pdf. Acess in: 30 dez. 2020.

M. Garrouste-Orgeas, V. Willems, J.F. Timsit, F. Diaw, S. Brochon, A. Vesin; F. Philippart, A. Tabah, I. Coquet, C. Bruel, M.L. Moulard, J. Carlet, N. Misse. “Opinions of families, staff, and patients about family participation in care in intensive care units” Journal of Critical Care, v. 25, n. 4, p. 634–640, dec. 2010. Available from: DOI: https://doi.org/10.1016/j.jcrc.2010.03.001

https://www.sciencedirect.com/science/article/abs/pii/S0883944110000729. Acess in: 02 mar. 2020.

P.H.G. Gomes, W.V. Mendes Junior. “O cuidado centrado no paciente nos serviços de saúde:

estratégias de governos e organizações não governamentais” Revista Acreditação, v. 7, n. 13, p. 23-43,

ago. 2017. Available from:

https://www.researchgate.net/publication/319377022_O_cuidado_centrado_no_paciente_nos_servicos_d

e_saude_estrategias_de_governos_e_organizacoes_nao_governamentais. Acess in: 15 set. 2019.

J.S. Gonzalez, A.W. Batchelder, C. Psaros, S. Safren. “Depression and HIV/AIDS treatment nonadherence: a review and meta-analysis. Journal of Acquired Immune Deficiency Syndromes” v. 58, n. 2, p. 181-187, Oct. 2011. Available from: https://journals.lww.com/jaids/Fulltext/2011/10010/Depression_and_HIV_AIDS_Treatment_Nonadherenc e__A.10.aspx. Acess in: 15 ago. 2020. DOI: https://doi.org/10.1097/QAI.0B013E31822D490A

J.H.V. Gilbert. “Interprofissional Education for Collaborative Patient-centred Nursing Leadership” v. 18, n. 2, p. 32-38, May 2005. Available from: http://www.longwoods.com/content/17181. Acess in: 08 fev. 2021. DOI: https://doi.org/10.12927/cjnl.2005.17181

Institute For Patient And Family Centered Care. Advancing the practice of patient and family centered care in hospitals. How to Get Started... 1. ed. Bethesda, MD. Jan. 2017. 22 p. Available from: https://www.ipfcc.org/resources/getting_started.pdf. Acess in: 8 set. 2020.

Y. Ishii, M. Miyashita, K. Sato, T. Ozawa. “A family’s difficulties in caring for a cancer patient at the end of life at home in Japan” Journal of Pain Symptom Management, v. 44, n. 4, p. 552-562, May DOI: https://doi.org/10.1016/j.jpainsymman.2011.10.011

Available from: https://www.jpsmjournal.com/article/S0885-3924(12)00021-8/fulltext. Acess in: 3 jul. 2020.

B.H. Johnson. “Family-Centered Care: four decades of progress” American Psychological Association,

v. 18, n. 2, p. 137-156, July 2000. Available from: https://psycnet.apa.org/record/2000-05119-001. Acess

in: 20 ago. 2020.

B. Johnson, M. Abraham, J. Conway, L. Simmons, S. Edgman-Levitan, P. Sodomka, J. Schlucter, D. Ford. “Partnering with Patients and Families to Design a Patient- and Family-

Centered health Care System - Recommendations and Promising Practices” California Health Care

Foundation. 2. ed. Ap. 2008. Available from:

https://www.ipfcc.org/resources/PartneringwithPatientsandFamilies.pdf. Acess in: 1 out. 2020.

Joint United Nations Programme On Hiv/Aids. Global HIV & AIDS statistics, 2018.

Available from: https://www.unaids.org/en/resources/fact-sheet.

Acess in: 08 set. 2020.

J. Kang, D. W. Shin, J.E. Choi, M. Sanjo, S.J. Yoon, H.K. Kim, M.S. Oh, H.S. Kwen, H.Y. Choi, W.H. Yoon. Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient. Psycho-Oncology, v. 22, n. 3, p. 564-471, mar. 2013. Available from: https://pubmed.ncbi.nlm.nih.gov/22275212/. Acess in: 25 maio 2020. DOI: https://doi.org/10.1002/pon.3033

D.Z. Kuo, A. J. Houtrow, P. Arango, K.A. Kuhlthau, J.M. Simmons, J.M. Neff. “Family-centered care: current applications and future directions in pediatric health care” Maternal and Child Health Journal, v. 16, n. 2, p. 297-305, Feb. 2012. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3262132/ Acess in: 18 fev. 2020. DOI: https://doi.org/10.1007/s10995-011-0751-7

R. Lightwood, W.S. Craig, C.C. Harvey, D. Mccarthy, R.M. Keith, C. Pinckney. The welfare of children in hospital. British Medical Journal, v. 1, n. 5115, p. 166-169, Jan. 1959. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1992241/pdf/brmedj02954-0054.pdf. Acess in: 8 ago. 2020. DOI: https://doi.org/10.1136/bmj.1.5115.166

M.A. Marcheti, M.A.M. Mandetta. Criança e adolescente com deficiência: programa de

intervenção de enfermagem com família. 1. ed. Goiânia: AB Editora, 2016.

A.C. Medeiros, R.L.F. Lima, L.B. Medeiros, R.M. Moraes, R.P.T. Vianna. Análise de sobrevida de pessoas vivendo com HIV/AIDS. Revista de Enfermagem UFPE, v. 11, n. 1, p. 47-56, jan. 2017. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/11877/14331. Acess in: 02 maio 2021.

E.G. Menezes, S.R.F. Santos, G.Z.S. Melo, G. Torrente, A.S. Pinto, Y.N.L.A. Goiabeira. “Fatores associados à não adesão dos antirretrovirais em portadores de HIV/AIDS” Acta Paulista de Enfermagem, v. 31, n. 3, p. 299-304, maio/jun. 2018. Disponível em: https://www.scielo.br/scielo.php?pid=S0103-21002018000300299&script=sci_arttext. Acesso em: 20 ago. 2019. DOI: https://doi.org/10.1590/1982-0194201800042

Ministry Of Health. Report on the welfare of children in hospital. London: HMSO, 1959.

Available from: Https://www.scielo.br/scielo.php?script=sci_nlinks&ref=000101&pid=S0104-

&lng=en. Acess in: 20 ago. 2020.

M. Miyada, A.J.Í. Garbin, R.C.J. Gatto, C.A.S. Garbin. “Treatment adherence in patients living with HIV/AIDS assisted at a specialized facility in Brazil” Revista da Sociedade Brasileira de Medicina Tropical v. 50, n. 5, p. 607-612, Sep./Oct. 2017. Available from: https://www.scielo.br/scielo.php?script=sci_arttext&pid=S0037-86822017000500607&lng=en&nrm=iso Acess in: 24 maio 2019. DOI: https://doi.org/10.1590/0037-8682-0266-2017

S.T. Moradian. Family-Centered Care: an evolutionary concept analysis. International Journal of

Medical Reviews, v. 5, n. 2, p. 82-86, June 2018. Available from: DOI: https://doi.org/10.29252/IJMR-050207

http://www.ijmedrev.com/article_79223_0b2f9f046d7a6427ba3efa8bdfd39dc6.pdf. Acess in: 22 ago.

M.G. Nanni, R. Caruso, A.J. Mitchell, E. Meggiolaro. Depression in HIV infected patients: a review. Current Psychiatry Reports, v. 17, n. 1, p. 1-11, Jan. 2015. Available from: https://www.researchgate.net/publication/268791648_Depression_in_HIV_Infected_Patients_a_Review. Acess in: 11 out. 2019. DOI: https://doi.org/10.1007/s11920-014-0530-4

Organização Pan-Americana de Saúde. Depressão (Folha informativa). mar. 2018. Available from: https://www.paho.org/bra/index.php?option=com_content&view=article&id=5635:folha-informativa-depressao&Itemid=1095 . Acess in: 04 out. 2020.

A.J. Pereira, L.Y.I. Nichiata. “A sociedade civil contra a Aids: demandas coletivas e políticas públicas” Ciência & Saúde Coletiva, v. 16, n. 7, p. 3249-3257, jul. 2011. Available from: https://www.scielo.br/pdf/csc/v16n7/24.pdf. Acess in: 26 jul. 2020. DOI: https://doi.org/10.1590/S1413-81232011000800024

D.S. Pinto, C.G. Mann, M. Wainberg, P. Mattos, S.B. Oliveira. “Sexuality, vulnerability to HIV, and mental health: an ethnographic study of psychiatric institutions” Caderno de Saúde Pública, v. 23, n. 9, p. 2224-2233, Sept. 2007. Available from: DOI: https://doi.org/10.1590/S0102-311X2007000900030

http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0102-311X2007000900030&lng=en. Acess in:

mar. 2021.

J. Poorolajal, E. Hooshmand, H. Mahjub, N. Esmailnasab, E. Jenabi. “Survival rate of AIDS disease and mortality in HIV-infected patients: a meta-analysis” Public Health. v. 139, p. 3-12. Oct. 2016. Available from: https://pubmed.ncbi.nlm.nih.gov/27349729/. Acess in: 2 maio 2021. DOI: https://doi.org/10.1016/j.puhe.2016.05.004

A.H.A.B. Queiroz, R.J.S. Pontes, A.M.A. Souza, T.B. Rodrigues. “Percepção de familiares e profissionais de saúde sobre os cuidados no final da vida no âmbito da atenção primária à saúde”. Ciência & Saúde Coletiva, v. 18, n. 9, p. 2615- 2623, jun. 2013. Disponível em: https://www.scielo.br/pdf/csc/v18n9/v18n9a16.pdf. Acess in: 28 set. 2020. DOI: https://doi.org/10.1590/S1413-81232013000900016

P. Rosenbaum, S. King, M. Law, G. King, J. Evans. “Family-centred service: A conceptual framework and research review” Physical & Occupational Therapy In Pediatrics, v. 18, n. 1, p. 1-20, Jul. 2009. Available from: https://www.tandfonline.com/doi/abs/10.1080/J006v18n01_01. Acess in: 01 out. 2020. DOI: https://doi.org/10.1080/J006v18n01_01

R.E. Rosenberg, P. Rosenfeld, E. Williams, B. Silber, J. Schlucter, S. Deng, G. Geraghty, S. Sullivan-Bolyai. “Parent’s perspectives on ‘keeping their children safe’ in the hospital” Journal of Nursing Care Quality, v. 31, n. 4, p. 318-326, Oct./Dec. 2016. Available from: https://pubmed.ncbi.nlm.nih.gov/27219828/. Acess in: 18 set. 2020. DOI: https://doi.org/10.1097/NCQ.0000000000000193

L.M.C. Sampaio. A formação do Programa Nacional de DST/AIDS no Brasil. 2018. Trabalho de

Conclusão de Curso (Bacharelado em Ciência Política) - Universidade de Brasília, Brasília, 2018.

Available from: https://bdm.unb.br/bitstream/10483/20453/1/2018_LeticiaMariaCamillloSampaio_tcc.pdf.

Acess in: 18 set. 2020.

E.M.F. Seidl, A. Melchiades, V. Farias, A. Brito. “Pessoas vivendo com HIV/AIDS: variáveis associadas à adesão ao tratamento antirretroviral” Cadernos de Saúde Pública, v. 23, n. 10, p. 2305-16, out. 2007. Available from: https://www.scielo.br/scielo.php?pid=S0102-311X2007001000006&script=sci_abstract&tlng=pt. Acess in: 28 set. 2020. DOI: https://doi.org/10.1590/S0102-311X2007001000006

L. Shields, J. Pratt, L. Davis, J. Hunter. “Family‐centred care for children in hospital” Cochrane Database of Systematic Reviews, v. 1, n. 1, p. 1-25, Jan. 2007. Available from: https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD004811.pub2/full. Acess in: 25 ago. 2019.

F.M. Silva, E.C. Batista, G. Cerqueira. “O uso de fármacos ansiolíticos e antidepressivos pelo cuidador de idoso acamado” Saúde em Foco, v. 3, n. 2, p. 62-76, abr. 2017. Available from: https://www.researchgate.net/publication/316064626_O_Uso_de_Farmacos_Ansioliticos_e_Antidepressi vos_Pelo_Cuidador_de_Idoso_Acamado. Acess in: 21 abr. 2020. DOI: https://doi.org/10.12819/rsf.2016.3.2.5

A.N.M. Silva, M.N.A. Sousa, A.B. Lima, M.C.L. Silva, J.C.A. Camboim, F.E.F. Camboim. “Vivências de portadores de tuberculose e importância da família à adesão terapêutica” Interfaces. Científicas - Saúde e Ambiente, v. 6, n. 1, p. 83-94, out. 2017. Available from: https://periodicos.set.edu.br/saude/article/view/3520 Acess in: 2 out. 2020. DOI: https://doi.org/10.17564/2316-3798.2017v6n1p83-94

A.G.P. Souza. “A construção da memória da epidemia de AIDS e seus desdobramentos: Qual o lugar dos museus nessa história?” 2020. Trabalho de Conclusão de Curso (Bacharelado em Museologia) - Universidade Federal de Santa Catarina, Florianópolis, 2020.

B.A. Styrt, T.D. Piazza-Hepp, G.K. Chikami. Clinical toxicity of antiretroviral nucleoside analogs. Antiviral Research, v.31, p. 121-135, feb.1996. Available from: https://www.sciencedirect.com/science/article/pii/0166354296852090. Acess in: 15 mar. 2021. DOI: https://doi.org/10.1016/0166-3542(96)85209-0

S.J. Tanenbaum. “What is Patient-Centered Care? A typology of models and missions” Health Care Analysis, v. 23, n. 3, p. 272–287, Sep. 2015. DOI: https://doi.org/10.1007/s10728-013-0257-0. Available from: https://link.springer.com/article/10.1007%2Fs10728-013-0257-0. Acess in: 13 ago. 2020. DOI: https://doi.org/10.1007/s10728-013-0257-0

UNAIDS BRASIL. Programa Conjunto das Nações Unidas sobre HIV/AIDS. Organização Mundial de Saúde. Sobre AIDS. 2019. Available from: https://unaids.org.br/informacoesbasicas/. Acess in: 15. abr. /2021.

US Department Of Health & Human Services. Patient Protection and Affordable Care Act. Washington, May 2010. 974 p. Disponível em: https://www.hhs.gov/sites/default/files/ppacacon.pdf Acesso em: 7 ago. 2020.

F.C. Vale, E.T. Santa-Helena, M.A. Santos, W.M.E.S. Carvalho, P.R. Menezes, C.R. Basso, M.H. Silva, A. M. Alves. “Development and validation of the WebAd-Q Questionnaire to monitor adherence to HIV therapy” Revista de Saúde Pública, v. 52, n. 62, p. 1-11, Jan. 2018. Available from: https://www.scielo.br/pdf/rsp/v52/pt_0034-8910-rsp-S1518-87872018052000337.pdf Acess in: 23 mar. 2019. DOI: https://doi.org/10.11606/S1518-8787.2018052000337

M.V. Villarinho, M.I. Padilha, L.M.M. Berardinelli, M.S. Borenstein, B.H.S. Meirelles, S.R. Andrade. “Políticas públicas de saúde face à epidemia da AIDS e a assistência às pessoas com a doença” Revista Brasileira de Enfermagem, v. 66, n. 2, p. 271-277, mar./abr. 2013. Disponível em: https://www.scielo.br/scielo.php?script=sci_arttext&pid=S0034-71672013000200018&lng=pt&nrm=iso. Acesso em: 10 jun. 2020. DOI: https://doi.org/10.1590/S0034-71672013000200018

C. Wacharasin. Theoretical foundations for advanced family nursing. In: M.M. Friedman,

V. R. Bowden, E.G. Jones, (ed.). Family Nursing: Research, Theory, and Practice. 5. ed.

Thailand: Burapha University, 2002.

World Health Organization (WHO). Depression and other common mental disorders: Global health estimates. 1. ed. Geneva: World Health Organization, 2017. Available from: https://apps.who.int/iris/bitstream/handle/10665/254610/WHO-MSD-MER-2017.2-eng.pdf;jsessionid=C32C673B99F16F2444830A41C21DEDED?sequence=1. Acess in: 24 out. 2019.

W.K.T. Wong, J. Ussher, P. Perz. Strength through adversity: bereaved cancer carers’ accounts of rewards and personal growth from caring. Palliative & Supportive Care, v. 7, n. 2, p. 187-196, June 2009. Available from: https://www.cambridge.org/core/journals/palliative-and-supportive-care/article/strength-through-adversity-bereaved-cancer-carers-accounts-of-rewards-and-personal-growth-from-caring/8A9649B2E00BDB85B48F1FED4921964C Acess in: 15 fev. 2020. DOI: https://doi.org/10.1017/S1478951509000248

L.M. Wright, M. Leahey. Enfermeiras e famílias: guia para avaliação e intervenção na família. 5. ed. São Paulo: Roca, 2012.

Downloads

Published

01-07-2021

How to Cite

Quintanilha , A. C. F., Nascimento, V. A., & Souza, . A. S. de. (2021). PERCEPTION OF THE PERSON WHO LIVES WITH HIV / AIDS AND THEIR FAMILIES IN RELATION TO THE CARE IN THE HOSPITALIZATION: CONSIDERING THE INDEX OF ANXIETY AND DEPRESSION. International Journal for Innovation Education and Research, 9(7), 153–172. https://doi.org/10.31686/ijier.vol9.iss7.3206